I open a comm to post, and I forget what fucking comm I’m in and have to double check so I know what to look for - sometimes two or three times. Immensely irritating. This is how I’ve operated most of my life, but it’s especially frustrating now that I know it’s not how it has to fucking be. Flowers for Algernon over here.
Fucking American healthcare. “At least we’re not Canada, you might have to wait for important care!” The fuck am I doing right now, then?
I’m sorry, that sucks. I know that feeling all too well.
US healthcare system is atrocious and more often than not these shortages (if that’s what it is) are due to arbitrary quotas by puritanical assholes treating us like addicts.
Sending some gentle vibes your way while you deal with this frustration, and hopefully you can get your meds back soon.
The first few days after stopping meds will be the worst as your body adjusts. Things will get better gradually.
It won’t be as good as when you’re taking the medication, but things won’t stay this bad forever.
Coffee and other similar stimulants can help make the wait a little more bearable.
I’m running on three weeks now.
:(
I feel your pain. I hope you find some relief soon.
Got to make a stash over time. But I get it; it’s not exactly the kind of thing we excel at.
Germany here, and I just learned that for the past month, my kid did actually not do so great at school, after his meds (Medikinet removed) were unavailable and he got a generic one with a completely different extended-release profile. Decided by pharmacist against doctor’s orders. Can’t believe it! Health insurance is EUR/USD 1100 per month here, and you’re not allowed to quit. Least I can expect is that he gets the 40 cents / day meds that help, after waiting a year to get diagnosed and treated!
If you don’t mind me asking: How did you manage to be required to pay that much for your health insurance? That seems unreasonable (unless you’re pretty well off).
Also, if Medikinet isn’t available where you are, what’s your pharmacist to do? They didn’t just decide on a whim to give your son some other med and they’ll have told you the reasons.
It’s 17% of income, capped at 1.1k, including nursing care insurance. So it sounds like you need to make good money, before you even reach the 1.1k. But the problem is that you can’t write off a lot here. E. g. I pay for my own meds, doctor and therapy entirely out of pocked, since I can’t get appointments in my insurance network, which is an additional 600 per month. And that is not a write-off, so it doesn’t reduce taxes or the 1.1k insurance. Also, you can get unlucky with other things. I have a child, but they said there was a formal error with the city-run daycare receipt, so they counted daycare costs at 0 for calculating taxes.
So what I expect is that they move heaven and hell to make the 40 cent pill for my son available, even on a health ministry level.
I’m German, I know the system. I’m going to be honest, I have no idea what you’re saying. Why do you have to pay for your own meds? “Insurance network”? Does your insurance company only allow certain doctors (change to a different company then, that sounds stupid as fuck)? I would assume they’d be obligated to either make sure you can get appointments or reimburse you. If there was an error in your Steuerbescheid, why wouldn’t you go back and ask for a revaluation using the correct figures?
I haven’t had any problems getting my Medikinet, ever, so I’m baffled at what happened there. Try a different pharmacy I suppose?
Sorry, I’m generally confused about your entire situation.
Did you get diagnosed recently? It’s now very hard to find a therapist or psychiatrist for treatment with a “Kassensitz”, even when already diagnosed. For diagnostic, it was truly hopeless; however, I should be able to switch to a psychiatrist within 6 months and a therapist within 9 months when I really try. 5 or 10 years ago, it was much easier. With a therapist, people wait many months, and if it turns out to be a bad fit, the wait starts all over.
The many contradicting experiences are just chance, I think. For example for my kid, I did ONE single call and got an appointment for ADHD diagnostic within 4 months. But I am fully aware that this is was very lucky. For his occupational therapy, I did about 10 calls, until I found one who is just opening a new practice, which was also very lucky. Paid 0 out of pocket for very good treatment. If you say it can get better than that, you are lying.
My own experience was the other extreme so far, but you are right that it is absolutely possible to get it paid for on insurance IF already diagnosed.
Has you tried coffee? Or other types of more natural stimulants? And I mean in copious amounts. Some people have said it helps them stay on one thing at a time.
I survived pre-diagnosis by heavy amounts of caffeine (which never did much for me) and judicious journalling, externalising thoughts does totally work for some people and at the least you’ll have a reference as to what you’re doing to come back to. I keep up the habit even on meds, helps on the days I accidentally forget a pill or late calling in a renewal (it’s really irritating I have to call every 60 days BTW, no refills for stims apparently)
the inconsistancy may be the worst part since we have a party who does not like things working. Its like flowers for algernon if you are in the us.
Then how fast did you write your post, OP?
Pretty fast. As long as I can keep the thought going, things are mostly okay. When I have to stop to sort through something or search through unrelated material, like my image folders, I lose what I was doing fast.
@adhd Hmm… Don’t you hate when you are working on something, someone calls you over to do something with them then you go about your day. Then the original thing you where doing somebody reminds you and your like OMG! or just leaving stuff that you where doing and hitting your head like Doh!
May I ask what happened that you are off your meds? Perhaps we can band together and find a solution.
(Example, on the menopause forums when doctors refuse or withdraw hrt, there can sometimes be help: online resources, or suggestions on what to ask and how to ask it, or suggestions on alternatives when certain dosages or therapies don’t work)
There’s a lot of overlap with adhd and meno brain (peri and meno also often uncover previously undiagnosed adhd)
Having outside help is invaluable when your own brain is scattered.
Uh, meds for things like ADHD are the same here in Canada, actually. While our hospitals and doctors are on a different system from you, our meds are generally the same… I mean, from the end-user business of private pharmacies and health insurance and whatnot. There’s some kind of collective negotiation with buying that I don’t know about that controls the prices.
Maybe find a strategy that works without stimulants. You made yourself dependant to the failing healthcare and the greedy pharma industry. Now you feel it, they let you down.
you sound like a coworker of mine that said he doesn’t go to the ophthalmologist bc glasses are a scam
You may not mean it that way but still: would you say the same thing to a person with diabetes?
I’m really fighting the urge for some very unkind comments in response to this.
Best to just down vote and move on.
Looks like @[email protected] has you appropriately covered there.
Maybe you should go fuck yourself.
I can’t speak for op but I tried that for 40 years Take the meds.
You made yourself dependant to the failing healthcare and the greedy pharma industry.
Are advocating for NOT using healthcare for a healthcare need?
This is what it looks like when you feel like being a condesending person who has no clue whatsoever about what you’re talking about.
Condescending"
You strike me as real piece of shit.
Victim blame much?
This kind of opinion isn’t welcome in here
